Project 2.3

Collation of quality of life data set

Little is known about the quality of life outcomes in the months following surgery. A large amount of research has been undertaken to define suitable Patient Reported Outcome Measures (PROMs) for surgical procedures, but many of these are designed for very specific disease/treatments and frequently neglect other aspects of a quality of life such as cognition or mood.

Perhaps the most reliable source of quality of life data is likely to be clinical trials of patients undergoing major surgery. Importantly these data include quality of life scores, and component data on different aspects of quality of life. We will collate a library of quality of life data from a variety of sources including clinical trials, large observational studies, and NHS PROMs schemes to inform the computational model development within our decision support intervention.